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#LongCovid

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Kirsty<p><a href="https://infosec.space/tags/Covid19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Covid19</span></a> hospital acquired infections still a major problem, yet precautions are not protecting vulnerable patients.</p><p>"We seem to ignore the people at the centre of this. We're dealing with people losing their lives. [The proposal] might benefit the system, but what harm are we causing to patients?"</p><p><a href="https://www.rnz.co.nz/news/what-you-need-to-know/545120/too-many-catching-covid-19-in-hospital-experts-say-but-precautions-being-rolled-back" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">rnz.co.nz/news/what-you-need-t</span><span class="invisible">o-know/545120/too-many-catching-covid-19-in-hospital-experts-say-but-precautions-being-rolled-back</span></a></p><p><a href="https://infosec.space/tags/Covid19NZ" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Covid19NZ</span></a> <a href="https://infosec.space/tags/CovidIsNotOver" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CovidIsNotOver</span></a> <a href="https://infosec.space/tags/MaskUp" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MaskUp</span></a> <a href="https://infosec.space/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://infosec.space/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicIllness</span></a> <br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/auscovid19" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>auscovid19</span></a></span></p>
Anna<p>Someone please take me in very soon or I will die here.<br>-No masking<br>-Mouldy room<br>-No help<br>-Little food<br>-Nowhere to shower. No seat allowed, mouldy<br>-No aircon (w severe <a href="https://zeroes.ca/tags/POTS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>POTS</span></a>)<br>-Sister moved next door comes eat, yell<br>-Sensory overload <br>So much more. There are no places to go for severely disabled. <br>I need GOOD PEOPLE TO HELP ME.<br>I’ve been screaming for years my health &amp; situation keep getting worse. <br>Help me😭<br><a href="https://zeroes.ca/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a> <a href="https://zeroes.ca/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://zeroes.ca/tags/ChronicPain" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicPain</span></a> <a href="https://zeroes.ca/tags/Abuse" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Abuse</span></a> <a href="https://zeroes.ca/tags/Neglect" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Neglect</span></a> <a href="https://zeroes.ca/tags/SeverePwME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SeverePwME</span></a></p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>mecfs</span></a></span> <br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/severeme" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>severeme</span></a></span> <br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span> <br><span class="h-card" translate="no"><a href="https://aus.social/@RAHU" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>RAHU</span></a></span> <br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/chronicpain" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>chronicpain</span></a></span> <br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/neisvoid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>neisvoid</span></a></span> <br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/pwme" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>pwme</span></a></span></p>
Broadwaybabyto<p>Mask bans already exist in certain States and counties. </p><p>Vance spearheaded a federal ban on mask mandates. </p><p>Organizing to codify the right to wear medical masks and respirators is (sadly) needed. </p><p>Masking is community care and resistance.</p><p>Illinois attempting to codify right to mask into law:</p><p><a href="https://pmefa.org/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="">pmefa.org/</span><span class="invisible"></span></a></p><p><a href="https://zeroes.ca/tags/uspoli" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>uspoli</span></a> <a href="https://zeroes.ca/tags/nomaskbans" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>nomaskbans</span></a> <a href="https://zeroes.ca/tags/ableism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ableism</span></a> <a href="https://zeroes.ca/tags/eugenics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>eugenics</span></a> <a href="https://zeroes.ca/tags/uglylaws" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>uglylaws</span></a> <a href="https://zeroes.ca/tags/disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disability</span></a> <a href="https://zeroes.ca/tags/longcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovid</span></a> <a href="https://zeroes.ca/tags/covidisairborne" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>covidisairborne</span></a></p>
Robot Diver<p>My friend sent me this today from an amazing snowshoe camping trip we took in 2016. </p><p>MECFS has altered my life in such a massive way that I'm sometimes at a loss for words. I would have easily hiked 80-100km in a weekend in spite of some heavy fibromyalgia symptoms back then. Now I'm happy when i can make it around the block.</p><p>That being said, I'm not the only one. I have another friend in this photo with a degenerative disorder, and I was worried my hiking buddies would disappear when i got sick and came out as trans. But they are still here and I know how rare that is. </p><p>I miss the alpine, I miss the plants, I miss the peace and the beautiful reset it gave my audhd each time, i miss the bonding with my friends, but this photo reminds me that you have to love each moment to its fullest because you never know what's right around the corner and I'm so glad I did.</p><p><a href="https://starlite.rodeo/tags/mecfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>mecfs</span></a> <a href="https://starlite.rodeo/tags/longCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longCovid</span></a> <a href="https://starlite.rodeo/tags/alpine" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>alpine</span></a> <a href="https://starlite.rodeo/tags/backcountry" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>backcountry</span></a> <a href="https://starlite.rodeo/tags/hiking" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>hiking</span></a></p>
Sven 🛌<p>Turns out, even a little bit activity is still too much activity.</p><p>Second day of debilitating tiredness. It really sucks the joy out of things to know that they'll potentially slow me down to a point where I have to postpone personal hygiene.</p><p>With a stricter resting regime in place and paperwork being due soon, this week feels almost over already.</p><p>😮‍💨</p><p><a href="https://mstdn.games/tags/CFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CFS</span></a> <a href="https://mstdn.games/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a> <a href="https://mstdn.games/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://mstdn.games/tags/SpoonieLife" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SpoonieLife</span></a></p>
Janet is prematurely obsolete<p>An actually good op-ed about the absurd erasure of <a href="https://weirder.earth/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a>, against the backdrop of politicians blaming the population for being sick. Thank you Frances Ryan <a href="https://www.theguardian.com/commentisfree/2025/mar/17/long-covid-pandemic-britain-power-lockdown-disease" rel="nofollow noopener noreferrer" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">theguardian.com/commentisfree/</span><span class="invisible">2025/mar/17/long-covid-pandemic-britain-power-lockdown-disease</span></a></p>
Jeri Dansky<p>Dr. David Putrino: ”There's no such thing as a Covid infection without consequence."<br> <br>An interview with Dr. Putrino as part of a longer program. This part starts at 19:30, or you can just scroll down to this segment of the show.<br><a href="https://www.cbc.ca/radio/quirks/mar-15-the-silent-long-term-effects-of-covid-and-more-1.7483146" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">cbc.ca/radio/quirks/mar-15-the</span><span class="invisible">-silent-long-term-effects-of-covid-and-more-1.7483146</span></a></p><p>h/t <span class="h-card" translate="no"><a href="https://friendhole.social/@beandreams" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>beandreams</span></a></span><br><a href="https://sfba.social/tags/Covid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Covid</span></a> <a href="https://sfba.social/tags/Covid19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Covid19</span></a> <a href="https://sfba.social/tags/CovidIsNotOver" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>CovidIsNotOver</span></a> <a href="https://sfba.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a></p>
Zorro Covid<p>23% of <a href="https://forall.social/tags/COVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>COVID</span></a> infections in the study turned into <a href="https://forall.social/tags/longCOVID" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longCOVID</span></a> , and 56% of those have symptoms that have persisted for 2 or more years.</p><p><a href="https://www.mcknights.com/news/long-covid-symptoms-persist-for-two-years-in-more-than-half-of-cases-study-finds/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">mcknights.com/news/long-covid-</span><span class="invisible">symptoms-persist-for-two-years-in-more-than-half-of-cases-study-finds/</span></a></p>
Jake<p>In <a href="https://aus.social/tags/Australia" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Australia</span></a> and have <a href="https://aus.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> and need healthcare that your GP isn't offering? Put yourself on the waitlist for Clinic Nineteen, and then get a simple referral from your GP closer to when you're accepted (current wait: 3-6 months).</p><p>Appointments are all telehealth. Initial appointment is $110 out of pocket (which is what I just had to pay for a GP out of pocket anyway), unclear about subsequent. </p><p>I don't know anything else about the clinic, have just put myself on the wait list, but making sure people know there are still services. <a href="https://aus.social/tags/Covid19" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Covid19</span></a> <a href="https://aus.social/tags/healthcare" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>healthcare</span></a></p><p><a href="https://clinicnineteen.com.au/about-us" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://</span><span class="">clinicnineteen.com.au/about-us</span><span class="invisible"></span></a></p>
Broadwaybabyto<p>This <a href="https://zeroes.ca/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidAwarenessDay</span></a> I’m reflecting on how many people have been let down by governments, public health &amp; medical establishments</p><p>How Covid has been downplayed, airborne spread ignored &amp; vaxx and relax strategies pushed for the sake of capitalism</p><p>How many have Long Covid because of this?</p><p>Those of us who were disabled before the pandemic could see this wave of chronic illness coming - and many of us have been screaming from the top of our lungs the last 5 years. </p><p>Begging people not to take their health for granted &amp; to wear a mask and protect themselves. </p><p>Warning them that there are no do-overs once you become chronically ill. Unfortunately very few people are listening - and many won’t understand the true devastation of <a href="https://zeroes.ca/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> until it directly impacts them. At which point it’ll be too late. </p><p>Despite seeing these waves of disability as an inevitable consequence of “let er rip” Covid strategy - one thing I did not see coming was how many people would willingly embrace not only ableism - but full on eugenics. </p><p>People in my own life who were previously kind &amp; supportive have become cruel and angry. The masks have been ripped off. They don’t hesitate to tell me that they blame me for the restrictions placed on them in the early days of Covid. </p><p>That they will never again allow their freedoms to be infringed on in the name of protecting the vulnerable. One even went as far as to say “you’ve been sick for years - just die already.” </p><p>People who say these things don’t understand what disabled ppl understand all too well - your health is not a permanent state. </p><p>Everyone will become disabled eventually - some earlier than others. Many who think they’re invulnerable are already vulnerable and don’t even know it </p><p>Yet rather than adapting behaviour and pushing for a new normal that makes the world safe for everyone - most temporarily abled people have instead doubled down on hateful eugenics talking points and want us to stay home forever (or worse - die). It needs to stop. </p><p>Covid is airborne and we all share the air. “You do you” individualism is quite literally killing people. We need to start caring about the air we share as this will lead to a healthier society for everyone. </p><p>Until then we need to mask up. It’s easy, incredibly effective &amp; it might save someone’s life. At the very least you will know you didn’t contribute to another person’s suffering - and you will be drastically reducing your own odds of getting Long Covid. It’s worth it. </p><p><a href="https://www.disabledginger.com/p/i-dont-know-anyone-with-long-covid" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">disabledginger.com/p/i-dont-kn</span><span class="invisible">ow-anyone-with-long-covid</span></a></p><p><a href="https://zeroes.ca/tags/longcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovid</span></a> <a href="https://zeroes.ca/tags/sarscov2" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sarscov2</span></a> <a href="https://zeroes.ca/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <a href="https://zeroes.ca/tags/covidisairborne" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>covidisairborne</span></a> <a href="https://zeroes.ca/tags/covidisnotover" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>covidisnotover</span></a> <a href="https://zeroes.ca/tags/pandemic" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>pandemic</span></a> <a href="https://zeroes.ca/tags/publichealth" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>publichealth</span></a> <a href="https://zeroes.ca/tags/disabilityrights" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disabilityrights</span></a> <a href="https://zeroes.ca/tags/disability" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>disability</span></a> <a href="https://zeroes.ca/tags/ableism" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ableism</span></a> <a href="https://zeroes.ca/tags/eugenics" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>eugenics</span></a></p>
Shantell Powell<p>I have a much harder time thinking these days. There are times I'm so tired that when I go to talk, I speak gibberish. I forget words all the time. Trying to find the word is like dragging my brain through a glue trap. I have a hard time reading any one thing for very long. I'm glad I can still write coherently, but I don't seem able to write much after supper. I'm also finding that I have an extremely hard time concentrating on much of anything after supper. I'm afraid I'll have to stop signing up for online evening classes because I can barely stay alert during them. It feels an awful lot like when I had mono back in 1989. <a href="https://c.im/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidAwarenessDay</span></a> <a href="https://c.im/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://c.im/tags/Covid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Covid</span></a> <a href="https://c.im/tags/BrainFog" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>BrainFog</span></a></p>
Shantell Powell<p>As far as I know, I've only had COVID once. It was a "mild" case. It didn't feel any worse than a cold and a bit of a sore throat for me. And even though I was fully vaccinated, took Paxlovid right away, and rested very very hard for three months (going to bed whenever I felt even the slightest bit tired), I still ended up with long COVID. I was strong and healthy before. I trained five days a week at the gym and yoga studio and hiked on weekends. </p><p>I'm scared shitless about getting COVID again. I'm one of the very few people I know who still masks regularly. <a href="https://c.im/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidAwarenessDay</span></a> <a href="https://c.im/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://c.im/tags/Covid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Covid</span></a> <a href="https://c.im/tags/MaskUp" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MaskUp</span></a></p>
Julie Webgirl - Just Your Luck<p>Well done <a href="https://masto.ai/tags/RollingStone" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>RollingStone</span></a> well done </p><p>👏👏👏👏👏👏👏</p><p>FRONT PAGE addresses <a href="https://masto.ai/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> and <a href="https://masto.ai/tags/ME" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ME</span></a></p>
Shantell Powell<p>I was an athlete for years. I did fitness competitions, trail running, mountain running, obstacle course races, interprovincial bicycling, hiking, and martial arts. I was a professional dancer, an aerialist, a model, and a LARPer. These days, I spend the vast majority of my time sitting down. I go to the gym a couple of times a week and try to go for walks every day, but if I exert too much or think too hard for too long, I'm exhausted. </p><p>This is not the normal feeling of being tired after a grueling workout. It's not a mind over matter thing. It's the kind of fatigue you feel when you're sick or dealing with a nasty injury. <a href="https://c.im/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidAwarenessDay</span></a> <a href="https://c.im/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://c.im/tags/PostExertionalMalaise" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>PostExertionalMalaise</span></a> <a href="https://c.im/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicIllness</span></a></p>
Broadwaybabyto<p>It’s International Long Covid Awareness Day, and my latest article looks at the reasons why people believe they don’t know anyone with Long Covid. </p><p>We desperately need increased visibility into this debilitating chronic illness so that we can raise awareness and fund treatments, mitigations and cures. </p><p>Anyone can get Long Covid. It’s not limited to ‘only the vulnerable’ or those who had a severe initial infection. </p><p>This disease does not discriminate. Even people with asymptomatic initial infections have found themselves disabled by Long Covid. </p><p>It’s time we start processing the trauma of the pandemic and stop living in denial. </p><p>We are in the middle of a mass disabling event, and the longer it takes us to admit that, the more people will be harmed.</p><p>Let’s spread the word that the only way to avoid Long Covid is to avoid getting Covid in the first place. </p><p>Wear a mask. Stay home when sick. Clean and ventilate the air. </p><p>When we all agree to care about the air we share, we can begin to bring about real change.</p><p><a href="https://www.disabledginger.com/p/i-dont-know-anyone-with-long-covid" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">disabledginger.com/p/i-dont-kn</span><span class="invisible">ow-anyone-with-long-covid</span></a></p><p><a href="https://zeroes.ca/tags/longcovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovid</span></a> <a href="https://zeroes.ca/tags/longcovidawarenessday" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>longcovidawarenessday</span></a> <a href="https://zeroes.ca/tags/covidisairborne" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>covidisairborne</span></a> <a href="https://zeroes.ca/tags/covidisnotover" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>covidisnotover</span></a> <a href="https://zeroes.ca/tags/sarscov2" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>sarscov2</span></a> <a href="https://zeroes.ca/tags/chronicillness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>chronicillness</span></a> <a href="https://zeroes.ca/tags/wearamask" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>wearamask</span></a></p>
Shantell Powell<p>Because of long COVID, my dad will never walk on the beach again. He can no longer play accordion or guitar because of long COVID. </p><p>Because of long COVID, I am no longer a martial artist, dancer, distance runner, or athlete. I no longer feel energetic. I no longer have proper restful sleep. I have aged rapidly. <a href="https://c.im/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidAwarenessDay</span></a> <a href="https://c.im/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://c.im/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicIllness</span></a></p>
Jen<p>I should probably post something meaningful and profound for <a href="https://geekdom.social/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidAwarenessDay</span></a> but I'm too tired after spending every spoon on my son's birthday.</p><p>Instead, inspired by someone else inviting people to <a href="https://geekdom.social/tags/SitTogether" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>SitTogether</span></a>, I'm just going to suggest we adopt Sit Down by James as our anthem.</p><p>"It's hard to carry on<br>When you feel all alone<br>Now I've swung back down again<br>It's worse than it was before"</p><p>Sit down next to me.<br>Sit down in sympathy.</p><p><a href="https://geekdom.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://geekdom.social/tags/MECFS" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MECFS</span></a> <a href="https://geekdom.social/tags/Solidarity" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Solidarity</span></a></p>
ahimsa<p>More quotes:</p><p>"Check out other organizations that fight for Long COVID day in and day out including: </p><p>Black Long COVID Experience, COVID-19 Longhaulers Advocacy Project, Long COVID Families and Patient-led Research Collaborative, among others! </p><p>Share information, check out these groups, donate today!</p><p>Long COVID research care and treatments matter for everyone."</p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span> </p><p>3/3</p><p><a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/Awareness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Awareness</span></a> <a href="https://disabled.social/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicIllness</span></a> <a href="https://disabled.social/tags/StopRestPace" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>StopRestPace</span></a> <a href="https://disabled.social/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidAwarenessDay</span></a></p>
ahimsa<p><a href="https://disabled.social/tags/MEAction" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEAction</span></a> has been fighting to protect the Long COVID Advisory Committee at HHS, which was recently dismantled. </p><p>In this video, five patient-advocates read an open letter to Health and Human Services Secretary Robert F. Kennedy Jr.</p><p><a href="https://www.youtube.com/watch?v=hQn3kqyAT6w" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">youtube.com/watch?v=hQn3kqyAT6</span><span class="invisible">w</span></a></p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span> </p><p>2/3</p><p><a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/Awareness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Awareness</span></a> <a href="https://disabled.social/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicIllness</span></a> <a href="https://disabled.social/tags/StopRestPace" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>StopRestPace</span></a> <a href="https://disabled.social/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidAwarenessDay</span></a> <a href="https://disabled.social/tags/USPol" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>USPol</span></a></p>
ahimsa<p>From <a href="https://disabled.social/tags/MEAction" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEAction</span></a>: </p><p>Long COVID Awareness Day<br>March 15</p><p><a href="https://www.meaction.net/2025/03/14/long-covid-awareness-day/" rel="nofollow noopener noreferrer" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">meaction.net/2025/03/14/long-c</span><span class="invisible">ovid-awareness-day/</span></a></p><p>"Today is Long COVID Awareness day, and we want to lift up the importance of Long COVID advocacy. We ask you to share this video created by <a href="https://disabled.social/tags/MEAction" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEAction</span></a> volunteers today."</p><p>Link to video in next post</p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener noreferrer" target="_blank">@<span>longcovid</span></a></span> </p><p>1/3</p><p><a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/Awareness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>Awareness</span></a> <a href="https://disabled.social/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>ChronicIllness</span></a> <a href="https://disabled.social/tags/StopRestPace" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>StopRestPace</span></a> <a href="https://disabled.social/tags/LongCovidAwarenessDay" class="mention hashtag" rel="nofollow noopener noreferrer" target="_blank">#<span>LongCovidAwarenessDay</span></a></p>